Join Us in the Fight Against Histiocytosis Today! 

5K to Fight Histio
VIRTUAL ONLY

PRESENTING SPONSOR


Participants Recieve a Histio Buff & Drawstring Bag



Upload your times & photos beginning 7/17 - 7/25

Here's How the Virtual Run Will Work

-- AFTER YOU REGISTER --
1. Go for a run on your own, with family or friends.
2. On Race Day click on this Result Link
3. Search for your name -click ‘Update’
4. Enter your time
OPTIONAL - upload a selfie and/or picture of you (up to five photos!)
ALSO, you can post on Instagram #5KtoFightHistio @LiamsLighthouse #efVirtualRun @elitefeats

EARLY REGISTRANTS (before 7/17) You can start posting results on 7/17 - 7/25
LATE REGISTRANTS (after 7/17) You must wait up to 24 hours to post results
BIB MAILING begins 7/12. Please allow 3-5 Business days to receive

What is the 5K to Fight Histio?

The 5K to Fight Histio takes place each year at Hudson River Park in New York City. It started with under 200 registrants in 2013 after Liam's Lighthouse Foundation and its supporters wanted to expand their outreach and awareness during the time they spent together in New York City.  In recent years, we reached over 510 registrants prior to race day! This 5K helps families from around the world gather together for a cause they hold close to their hearts while raising awareness and much needed funds for Histiocytosis at leading researching hospitals in the US.
Join us and SIGN UP today!

Who’s ready for the 2021 5K To Fight Histio!  Join us virtually once again this year by registering your team and fundraising to support ground-breaking research!  We are pleased to announce that proceeds from the event will go to help fund research initiatives at Cincinnati Children's Hospital (for LCH) and St. Jude's Children's Hospital (for HLH). 

HLHRUXO: Use of a Response-Adapted Ruxolitinib-containing Regimen for the Treatment of Hemophagocytic Lymphohistiocytosis run by Dr. Kim Nichols lab at St. Jude’s  Children’s Research Hospital.   This trial is based on our basic laboratory research and aims to test the efficacy of a new type of drug called a JAK inhibitor for children with HLH. JAK inhibitors suppress the pro-inflammatory effects of cytokines, and in so doing, they decrease the manifestations of HLH. Although we have some support from industry, we need more funding in order to complete the trial and carry out studies to better understand whether and how the JAK inhibitor mediates its effects in patients with HLH.   For more details about this trial, please go Here.

Personalized histiocytosis care with HistioTrak: (run by Dr. Ashish Kumar’s Lab at Cincinnati Children’s Hospital.) We now know that all histiocytoses are driven by acquired mutations in one of the members of the MAP kinase pathway most commonly BRAF and MAP2K1. After development and validation of HistioTrak, a novel molecular testing method to detect rare histiocytic cells in the patient's blood, we will follow the mutation levels in blood while the patient is undergoing treatment. If the patient enters molecular remission (ie. no detectable cells with mutation) using ultrasensitive molecular techniques, it may be safe to stop therapy without risk of relapse. In order to clinically validate this hypothesis, funds are needed to generate the prospective data on a large patient cohort. This will help develop a personalized clinical treatment algorithm for guiding physicians for their specific patient, with their specific molecular alteration about stopping targeted therapy without risk of disease.


CORPORATE MATCHING

DOUBLE or even TRIPLE your donation!
Find more info HERE


SCROLL TO THE BOTTOM OF THE PAGE FOR EVENT DETAILS


REGISTER

Early Bird Registration: $35
Price Increases to $40 on 5/30

  • Includes personalized bib, buff & drawstring bag
    Ages 12 & Under: $25 ($35 on 5/30)
    (enter age below for discount)

    Scroll to the bottom of the page for 'how to' Virtual.
    #5KtoFightHistio #efVirtual

UNCHECK to go back!


THANK YOU FOR YOUR ADDITIONAL SUPPORT

Every step taken & every dollar raised brings us closer to the ultimate finish line... A CURE!

Suggested Amounts

CREATE/JOIN A 'RUN/WALK' TEAM (Optional NON-FUNDRAISER Team)

Individuals: Please Select *Individuals: Team 5K to Fight Histio
Teams: Please place "Team" before your team name!

Type 'Team' before your team name! Individuals select the 1st Team!

Team Name is followed by Captain's Name.


INCREASE YOUR IMPACT, FUNDRAISER TEAMS!

We hope you'll consider setting up a TEAM FUNDRAISING PAGE after signing up for the 5K run/walk!  We want to make it easier for you to fundraise so we are creating a team fundraising post for you to share on your social media!  All we need is for you to answer a few questions.  Once your team post is created, it will be shared on our social media pages with your ability to share to all of your family and friends!  Please answer the following questions:

Below is set to send you a reminder email about setting up your Fundraiser page. This is optional but we thank you for your consideration and support to Fight Histio!


PARTICIPANT INFO

Items will not be shipped internationally.
You can still participate and post your times/photos!


READ & INITIAL

ALL FEES ARE NON-REFUNDABLE

ALL FEES ARE NON-REFUNDABLE

Nor are they transferable from year to year. Once you are signed up, race fees are used for race expenses and cannot be returned.

In consideration of accepting this entry, I understand and agree to be legally bound hereby for myself, my heirs, executors, administrators, successors and waive, release and hold harmless Virtual 5K to Fight Histio NYC, elitefeats inc., and any volunteers and all race sponsors and their agents, employees and representatives for any and all injuries, claims, liabilities and causes of action related to my participation in this event. I attest that I am physically fit and have sufficiently trained for the completion of this event and that my condition has been verified by a licensed medical doctor. I further grant permission to any of the foregoing organizations to take and use photographs, video, and recordings or any other record of this event for any purpose whatsoever.

If signed by a parent, the parent agrees to release and hold the above-named organizations and persons harmless of any claims which may be asserted by or on behalf of the entrant as well.
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